I have Factor V Leiden (FVL) and I want to make a difference to someone else’s life so they don’t go through the trauma I’ve been through.
FVL mutation is an inherited disorder which simply indicates one’s blood is thicker than the average person’s and is susceptible to blood clotting.
Those who have the FVL gene are at high risk for clots that form in veins in the legs (deep vein thrombosis – DVT) or clots that travel through the bloodstream, to the heart, and then the lungs (pulmonary embolism – PE) or the brain (stroke).
FVL is so common, it’s suspected that one out of every 20 Caucasian people has it but it can disrupt life incredulously. People with FVL are urged to not take hormone pills (contraception) and when flying should inject themselves with instant blood thinning agents like Clexane or similar; pregnancy is higher risk but treatable and manageable, and water intake and exercise is crucial to keeping blood flow healthy.
Click here: Women’s Health Magazine article – written by David Goding, June 2009
Click here: Examiner Newspapers article - written by Kate Dzienis, September 2012
Click here: Echo Newspaper article - written January, 2013
To join my online community, please visit my Facebook group page and tell us your story. It’s a small group at the moment but hopefully numbers will increase with your help.
Here are a couple blogs I’ve posted on my experience with FVL:
Below is also a list of some websites you may find useful when researching FVL. If you have anyquestions or concerns, always speak to a specialist. Get in touch with me if you’re not sure about something and are looking for some personal advice. There is a lack of Australian informative websites so it’s the best I can find.
*AVAILABLE FOR AUSTRALIAN RESIDENTS ONLY*
I have created some red silicone bands to raise more awareness about FVL throughout Australia and am selling them for $2 each. There is no profit made whatsoever. If you would like to buy one or two (maximum of five per order) message me through my Facebook FVL page. All I ask is that you pay postage of $7 and wear the bands proudly to get people talking, so hit the message button in the FB link and help raise awareness! *Available for Australian residents only*